“Narcolepsy takes your world and sort of flips it upside down.”– Scott

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Every Story About Narcolepsy Is Different

Hearing stories from people living with narcolepsy can help when evaluating the impact of the disorder in clinical practice.

Your patients living with narcolepsy may have their own unique stories to tell. Get to know this extraordinary group of people who share their stories about the impact of narcolepsy on their lives. Watch now »

Ijeoma

Ijeoma

30 years old

Medical communications professional

Living with narcolepsy

Matt

Matt

37 years old

Property manager

Living with narcolepsy

Leah

Leah

24 years old

Teacher

Living with narcolepsy

Sean

Sean

33 years old

Salesperson

Living with narcolepsy

Katie

Katie

33 years old

Consultant

Living with narcolepsy

Scott

Scott

48 years old

Stay-at-home dad

Living with narcolepsy

Emily

Emily

28 years old

Bookkeeper and competitive snowmobiler

Living with narcolepsy

Sharon

Sharon

43 years old

Case manager

Living with narcolepsy

Nicki

Nicki

29 years old

Philosophy graduate student

Living with narcolepsy

Support for people living with narcolepsy is available.

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Nicki EDS Impact Video
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Excessive Daytime Sleepiness (EDS) and Its Daily Impact

Nicki, 29 years old

Excessive daytime sleepiness has significantly affected Nicki’s life, especially due to “surprise naps” that have caused her to sleep through her own birthday celebration.

Matt Excessive Daytime Sleepiness Video
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Recognizing Narcolepsy and Excessive Daytime Sleepiness

Matt, 37 years old

In college, Matt recognized that he was always the first one to leave the party, but he didn’t know it was because of excessive daytime sleepiness associated with narcolepsy.

Emily Diagnosis Video
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People With Narcolepsy Are Often Misunderstood

Emily, 28 years old

Emily knows those living with narcolepsy are no different from anyone else. Listen to her story as she shares how narcolepsy symptoms can be mislabeled by others who don’t understand the disorder.

Emily Diagnosis Video
Watch Video

What Does Excessive Daytime Sleepiness (EDS) With Narcolepsy Feel Like?

Emily, Scott, Sharon, & Sean

Four Personal Stories: Four people living with narcolepsy share their experience of what excessive daytime sleepiness (EDS) feels like for them.

Nicki Cataplexy Triggers Video
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What Cataplexy Can Feel Like

Nicki, 29 years old

Nicki describes what triggers her cataplexy and what it feels like when she loses muscle control.

Sean Emotional Cataplexy Triggers Video
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Emotions That Can Trigger Cataplexy Attacks

Sean, 33 years old

Cataplexy attacks have interfered with big moments in Sean’s personal and professional life, like when he got engaged. Narcolepsy with cataplexy affects everyone differently, but attacks are often brought on by strong emotions.

Sharon Social Cataplexy Triggers Video
Watch Video

Emotions That Can Trigger Cataplexy Attacks

Sean, 33 years old

Cataplexy attacks have interfered with big moments in Sean’s personal and professional life, like when he got engaged. Narcolepsy with cataplexy affects everyone differently, but attacks are often brought on by strong emotions.

Sean Avoiding Emotions Video
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Avoiding Emotions to Control Cataplexy

Sean, 33 years old

Partial cataplexy in his face has impacted Sean’s life. Avoiding emotions to control attacks has become part of his personality.

Sharon Social Cataplexy Triggers Video
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Social Situations Triggered My Cataplexy

Sharon, 43 years old

After experiencing cataplexy while holding her infant son, Sharon started to avoid social situations.

Nicki Cataplexy Triggers Video
Watch Video

What Cataplexy Can Feel Like

Nicki, 29 years old

Nicki describes what triggers her cataplexy and what it feels like when she loses muscle control.



Sean Emotional Cataplexy Triggers Video
Watch Video

Emotions That Can Trigger Cataplexy Attacks

Sean, 33 years old

Cataplexy attacks have interfered with big moments in Sean’s personal and professional life, like when he got engaged. Narcolepsy with cataplexy affects everyone differently, but attacks are often brought on by strong emotions.

Sean Avoiding Emotions Video
Watch Video

Avoiding Emotions to Control Cataplexy

Sean, 33 years old

Partial cataplexy in his face has impacted Sean’s life. Avoiding emotions to control attacks has become part of his personality.

Sharon Social Cataplexy Triggers Video
Watch Video

Social Situations Triggered My Cataplexy

Sharon, 43 years old

After experiencing cataplexy while holding her infant son, Sharon started to avoid social situations.

Narcolepsy Symptoms Montage Video
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Narcolepsy Symptoms Can Include Sleep Paralysis, Hypnagogic Hallucinations

Emily, Sean, Sharon, & Scott

Narcolepsy symptoms can go beyond excessive daytime sleepiness and cataplexy. People living with narcolepsy share their experiences with hypnagogic hallucinations, sleep paralysis, and disrupted nighttime sleep.

Scott Support Video
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My Advice for Living With Narcolepsy

Scott, 48 years old

Scott shares his experience living with narcolepsy and offers advice to others living with the disorder. Hear his thoughts about finding support, the right doctor, as well as the inner resilience needed to manage life with narcolepsy.

Emily Daily Life Video
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Living With Narcolepsy Day to Day

Emily, 28 years old

Hear the narcolepsy tips and tricks Emily has to share about the small changes she has made to help her day to day.



Montage Video of Personal Stories
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Personal Stories of Living With Narcolepsy

Ijeoma, Matt, Sean, & Leah

People with narcolepsy share their personal stories, perspectives, and insights on living with narcolepsy. They share their thoughts on living a full and productive life with narcolepsy.

Montage Video of tips for living with narcolepsy
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Tips for Daily Living With Narcolepsy

Ijeoma, Matt, Sean, & Leah

Hear tips for daily living with narcolepsy from people who have the disorder. From building a daily routine to practicing mindfulness, people living with narcolepsy share how they have learned to manage their symptoms day to day.

Montage Video of Personal Stories
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My Narcolepsy Story: Living Above the Diagnosis

Ijeoma, 30 years old

For Ijeoma, her narcolepsy symptoms create many challenges in her professional and personal life. Despite these obstacles, she knows that narcolepsy does not define her.

Scott Impact of Narcolepsy Video
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Biggest Impact of Narcolepsy

Scott, 48 years old

Scott shares why he believes narcolepsy changed the way his friends and family saw him and how the disorder set the course for his life today.

Matt How to explain narcolepsy video
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How to Answer, “What Is Narcolepsy?”

Matt, 37 years old

What is narcolepsy? Getting other people to understand the impact of narcolepsy symptoms is not easy. Hear from Matt on how he explains his narcolepsy symptoms to others.

Leah Social impact of narcolepsy video
Watch Video

How to Manage the Social Impact of Narcolepsy

Leah, 24 years old

Leah shares the impact of narcolepsy on her social life. If things don’t go as planned, she remembers that every day is a new opportunity.

Scott Impact of Narcolepsy Video
Watch Video

A Parent’s Perspective: Being a Parent With Narcolepsy

Scott, 48 years old

Scott, a stay-at-home dad, shares his journey navigating fatherhood while living with narcolepsy.

Emily Support Group Video
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Support System for People Living With Narcolepsy

Emily, 28 years old

Emily shares the importance of having a support system and who she includes in hers.

Sharon Finding your narcolepsy support group video
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Finding Your Narcolepsy Support Group

Sharon, 43 years old

Finding your support group may take time, but be patient and remember that you are not alone.

Katie Preparing for Next Appointment video
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Preparing for Your Next Doctor Appointment if Diagnosed With Narcolepsy

Matt, Leah, Ijeoma, Katie, & Sharon

Living with narcolepsy can be very challenging. Hear people living with narcolepsy explain their approach to working with their physician.

Nicki EDS Impact Video
Matt Excessive Daytime Sleepiness Video
Emily Diagnosis Video
Emily Diagnosis Video
Nicki EDS Impact Video
Watch Video

Excessive Daytime Sleepiness (EDS) and Its Daily Impact

Nicki, 29 years old

Excessive daytime sleepiness has significantly affected Nicki’s life, especially due to “surprise naps” that have caused her to sleep through her own birthday celebration.

Matt Excessive Daytime Sleepiness Video
Watch Video

Recognizing Narcolepsy and Excessive Daytime Sleepiness

Matt, 37 years old

In college, Matt recognized that he was always the first one to leave the party, but he didn’t know it was because of excessive daytime sleepiness associated with narcolepsy.

Emily Diagnosis Video
Watch Video

People With Narcolepsy Are Often Misunderstood

Emily, 28 years old

Emily knows those living with narcolepsy are no different from anyone else. Listen to her story as she shares how narcolepsy symptoms can be mislabeled by others who don’t understand the disorder.

Emily Diagnosis Video
Watch Video

What Does Excessive Daytime Sleepiness (EDS) With Narcolepsy Feel Like?

Emily, Scott, Sharon, & Sean

Four Personal Stories: Four people living with narcolepsy share their experience of what excessive daytime sleepiness (EDS) feels like for them.

Nicki Cataplexy Triggers Video
Sean Emotional Cataplexy Triggers Video
Sean Emotional Cataplexy Triggers Video
Sharon Social Cataplexy Triggers Video
Sean Avoiding Emotions Video
Nicki Cataplexy Triggers Video
Watch Video

What Cataplexy Can Feel Like

Nicki, 29 years old

Nicki describes what triggers her cataplexy and what it feels like when she loses muscle control.

Sean Emotional Cataplexy Triggers Video
Watch Video

Emotions That Can Trigger Cataplexy Attacks

Sean, 33 years old

Cataplexy attacks have interfered with big moments in Sean’s personal and professional life, like when he got engaged. Narcolepsy with cataplexy affects everyone differently, but attacks are often brought on by strong emotions.

Sean Emotional Cataplexy Triggers Video
Watch Video

Avoiding Emotions to Control Cataplexy

Sean, 33 years old

Partial cataplexy in his face has impacted Sean’s life. Avoiding emotions to control attacks has become part of his personality.

Narcolepsy Symptoms Montage Video
Watch Video

Narcolepsy Symptoms Can Include Sleep Paralysis, Hypnagogic Hallucinations

Emily, Sean, Sharon, & Scott

Narcolepsy symptoms can go beyond excessive daytime sleepiness and cataplexy. People living with narcolepsy share their experiences with hypnagogic hallucinations, sleep paralysis, and disrupted nighttime sleep.

Sharon Social Cataplexy Triggers Video
Watch Video

Social Situations Triggered My Cataplexy

Sharon, 43 years old

After experiencing cataplexy while holding her infant son, Sharon started to avoid social situations.

Scott Impact of Narcolepsy Video
Matt Excessive Daytime Sleepiness Video
Leah Social impact of narcolepsy video
Scott A Parent’s Perspective: Being a Parent With Narcolepsy video
Scott Impact of Narcolepsy Video
Watch Video

Biggest Impact of Narcolepsy

Scott, 48 years old

Scott shares why he believes narcolepsy changed the way his friends and family saw him and how the disorder set the course for his life today.

Emily Managing Symptoms Video
Watch Video

Narcolepsy Doesn’t Rule Her Life

Emily, 28 years old

Emily shares how narcolepsy is a part of her life, but doesn’t rule it. Hear about what symptoms she experiences and how she lives her life with narcolepsy.

Matt How to explain narcolepsy video
Watch Video

How to Answer, “What Is Narcolepsy?”

Matt, 37 years old

What is narcolepsy? Getting other people to understand the impact of narcolepsy symptoms is not easy. Hear from Matt on how he explains his narcolepsy symptoms to others.

Leah Social impact of narcolepsy video
Watch Video

How to Manage the Social Impact of Narcolepsy

Leah, 24 years old

Leah shares the impact of narcolepsy on her social life. If things don’t go as planned, she remembers that every day is a new opportunity.

Leah Social impact of narcolepsy video
Watch Video

A Parent’s Perspective: Being a Parent With Narcolepsy

Scott, 48 years old

Scott, a stay-at-home dad, shares his journey navigating fatherhood while living with narcolepsy.

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Performance of routine tasks without awareness.

Sudden and brief loss of muscle tone, often triggered by strong emotions or certain situations. Narcolepsy with cataplexy is known as narcolepsy type 1.

Complete collapse to the ground; all skeletal muscles are involved.

Only certain muscle groups are involved.

Biological clock mechanism that regulates the 24-hour cycle in the physiological processes of living beings. It is controlled in part by the SCN in the hypothalamus and is affected by the daily light-dark cycle.

Frequent awakenings and inappropriate transitions between states of sleep and wakefulness during nighttime sleep.

The inability to stay awake and alert during the day.

A neurotransmitter in the brain that supports wakefulness.

Vivid, realistic, and frightening dream-like events that occur when falling asleep.

A neuropeptide that supports wakefulness and helps suppress non-REM sleep and REM sleep.

Primary brain region for regulating the timing of sleep-wake states.

Unintentionally falling asleep due to excessive daytime sleepiness. Also known as “sleep attacks.”

Brief, unintentional lapses into sleep, or loss of awareness.

A validated objective measure of the tendency to fall asleep in quiet situations.

People with narcolepsy type 1 have low levels of hypocretin.

Narcolepsy without cataplexy; the cause of narcolepsy type 2 is unknown.

A state of sleep characterized by slower-frequency, more synchronized neuronal activity and decreased muscle tone. Deep stages help to restore the body.

A multiparameter test that monitors physiologic signals during sleep; used as a diagnostic tool in sleep medicine.

A state of sleep characterized by low-amplitude, fast-frequency EEG, vivid dreams, and loss of muscle tone. Normally occurs 60-90 minutes after sleep onset. Also known as “paradoxical sleep.”

Brief loss of control of voluntary muscles with retained awareness at sleep-wake transitions.

Sleep-onset REM period.