Perspectives From Real People Living With Narcolepsy
Listening to stories from people living with narcolepsy can help when evaluating the impact of the disorder in clinical practice.
Your patients living with narcolepsy have their own unique stories to tell. Hear from real people living with narcolepsy as they share their stories about the impact of the disorder on their lives.
Excessive Daytime Sleepiness (EDS)
Excessive Daytime Sleepiness and Its Daily Impact
Excessive daytime sleepiness has significantly affected Nicki’s life, especially due to “surprise naps” that have caused her to sleep through her own birthday celebration.
Recognizing Narcolepsy and Excessive Daytime Sleepiness
In college, Matt recognized that he was always the first one to leave the party, but he didn’t know it was because of excessive daytime sleepiness associated with narcolepsy.
What Does Excessive Daytime Sleepiness (EDS) With Narcolepsy Feel Like?
Emily, Scott, Sharon, & Sean
Four Personal Stories: Four people living with narcolepsy share their experience of what excessive daytime sleepiness (EDS) feels like for them.
What Cataplexy Can Feel Like
Nicki describes what triggers her cataplexy and what it feels like when she loses muscle control.
Emotions That Can Trigger Cataplexy Attacks
Cataplexy attacks have interfered with big moments in Sean’s personal and professional life, like when he got engaged. Narcolepsy with cataplexy affects everyone differently, but attacks are often brought on by strong emotions.1
Avoiding Emotions to Control Cataplexy
Partial cataplexy in his face has impacted Sean’s life. Avoiding emotions to control attacks has become part of his personality.
Social Situations Triggered My Cataplexy
After experiencing cataplexy while holding her infant son, Sharon started to avoid social situations.
Biggest Impact of Narcolepsy
Scott shares why he believes narcolepsy changed the way his friends and family saw him and how the disorder set the course for his life today.
A Parent’s Perspective: Being a Parent With Narcolepsy
Scott, a stay-at-home dad, shares his journey navigating fatherhood while living with narcolepsy.
- American Academy of Sleep Medicine. International Classification of Sleep Disorders. 3rd ed. Text Revision. American Academy of Sleep Medicine; 2023.