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Narcolepsy Resources for Your Patients
Share these educational resources and organizations with your patients during their appointments.
Patient Resources
Know Narcolepsy has developed tools to help your patients better understand their symptoms and talk about the impact of the disorder.
Science of Narcolepsy Handout
Help your patients understand the pathophysiology of narcolepsy with this easy-to-digest handout.
Science of Narcolepsy Handout
The Know Narcolepsy® Survey
The Know Narcolepsy Survey* was conducted to improve understanding of narcolepsy and its impact, bringing to light the need for increased education. Share the results with your patients or colleagues.
The Know Narcolepsy® Survey
Tips for Living with Narcolepsy
*The Know Narcolepsy Survey was a three-part survey of 1,654 US adults including those with narcolepsy (n=200), the general public (n=1,203), and physicians (n=251) currently in clinical practice who have treated patients with narcolepsy in the last 2 years. Surveys of people with narcolepsy and the general public were conducted online in March and April 2018, and physicians were surveyed in August 2018. Versta Research conducted the survey on behalf of Harmony Biosciences.1 The Narcolepsy Network collaborated on the patient survey.
KnowNarcolepsy.com
Know Narcolepsy provides educational information and resources for people living with narcolepsy to help them understand the impact of their symptoms and better manage day-to-day life with narcolepsy. Encourage your patients with narcolepsy to explore this online resource.
Educational Organizations
American Academy of Sleep Medicine
The AASM improves sleep health and promotes high quality, patient-centered care through advocacy, education, strategic research, and practice standards.
National Sleep Foundation
A foundation dedicated to improving health and well-being through sleep education and advocacy.
Stanford Center for Narcolepsy
A leader in narcolepsy research established in the 1980s to find the cause of narcolepsy, develop new treatments, and eventually prevent and cure this complex disorder.
Patient Support Organizations
Global Genes: Allies in Rare Disease
Global Genes is a global patient advocacy organization that focuses on connecting, empowering, and inspiring the rare disease community.
Narcolepsy Network
A national patient support organization focused on educating and empowering people with narcolepsy as well as the public at large.
The Narcolepsy Network has gathered a list of reliable groups where people living with narcolepsy can share their experiences. Find a group in your area »
National Organization for Rare Disorders
A patient advocacy organization committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.
Project Sleep
An organization raising awareness about sleep health and sleep conditions, including programming to empower and support people with narcolepsy.
Wake Up Narcolepsy
A 501(c)(3) not-for-profit organization that seeks to raise narcolepsy awareness, bringing direction to the search for a cure while providing a strong community of support to patients and caregivers.
Wake Up Narcolepsy keeps an up-to-date list of their weekly online support group meetings that can be found here along with the latest news and educational events.
Harmony Biosciences is not responsible for the content of third-party websites.
- Data on file. Harmony Biosciences.
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