Narcolepsy Resources for Healthcare Professionals
Access tools and downloadable resources for you and your office.
Narcolepsy Tools and Resources
A Quick Guide for Evaluating the Impact of Narcolepsy
Understanding the impact of excessive daytime sleepiness and other symptoms on patient functioning and quality of life is important for improving clinical outcomes.
Clinical Conversation Simulator Tool
Enhance your clinical interview skills and gain insight into the impact of ongoing symptoms in people living with narcolepsy.
Narcolepsy Assessment Tool
Use this tool to help your patients assess how narcolepsy may be interfering with their lives. Encourage them to share their results at their next appointment.
A Guide to the Pathophysiology of Narcolepsy
A concise guide to understanding signs and symptoms that reflect sleep-wake state instability as well as the underlying neuronal processes behind stable wakefulness.
Epworth Sleepiness Scale (ESS)
An 8-item questionnaire to assess daytime sleepiness based on a person’s sleep propensity in common situations.Access scale »
Narcolepsy Severity Scale (NSS)
A 15-item scale that evaluates the frequency and impact of the five main narcolepsy symptoms.Access scale »
Functional Outcomes of Sleep Questionnaire-10 (FOSQ-10)
A 10-item questionnaire that assesses the impact of excessive daytime sleepiness on daily activities.Access scale »
Ana Carolina Rodrigues Aguilar, Cristina Frange, Lucio Huebra, Ana Carolina Dias Gomes, Sergio Tufik, Fernando Morgadinho Santos Coelho
During quarantine, Brazilian patients with narcolepsy reported changes in their sleep-wake schedules, suggesting a tendency to circadian misalignment. There were strong associations found between changes in bedtime schedules and worsening excessive daytime sleepiness as well as a reduction in hallucinations.
Heide Baumann-Vogel, Lina Schreckenbauer, Philipp O. Valko, Esther Werth, Christian R. Baumann
The findings of this study suggest that the prevalence of narcolepsy type 2 may be up to 20-25 times lower than narcolepsy type 1. The authors emphasize the importance of excluding other potential causes of sleepiness when making a diagnosis of narcolepsy type 2.
Bei Huang, Tao Xu, Zongwen Wang, Ku Chen, Jihui Zhang, Zhongxin Zhao, Jianhua Zhuang, Huijuan Wu
The process of a cataplexy attack was found to occur in four stages: triggering, resisting, atonic, and recovering. The resisting stage was found to make up over half the duration of cataplexy episodes and may represent compensation efforts to avoid succumbing to full muscle atonia.
Jason C. Ong, Spencer C. Dawson, Jennifer M. Mundt, Cameron Moore
A novel cognitive behavioral therapy for hypersomnia (CBT-H) was shown to reduce depressive symptoms and improve self-efficacy in people with central disorders of hypersomnolence, including narcolepsy. Behavioral strategies included structured daytime schedule and scheduled naps and were customized based on disease-specific symptoms. Cognitive strategies were aimed at processing changes in self-identity or limitations and challenges relating to the disease (e.g. addressing anxiety with cataplexy for people living with narcolepsy type 1).